Comment Re:Lots of weird crap coming out of Congress latel (Score 1) 517
...The (Republican) backers response? Apparently they think participants/Patients should sign a waiver agreeing that the raw study data might be made public, or they can simply choose not to participate in the study.
Oh come on moderators! That is false, false, false false. It does not deserve the +5 informative.
As many other posts here have correctly pointed out, there is no such requirement for a signed a waiver. According to HIPAA patient data can be published if it is stripped of personal identifying information such as names and soc. numbers. The falsehood that the Democrats are pushing is that research data must be either kept secret from the public or that, impractically, the personal identifying information must be publicly released with signed waivers.
This is about government officials trying to avoid public accountability by keeping secrets. Please stop enabling that by modding up propaganda.