L0stb0Y's Journal: Friends helping out...

It is amazing to see how many people are helping out. Some friends have set up a paypal account for online donations, and my work has opened a bank account at Bank of America for charitable donations. This is all so amazing to watch.

Update:

We are on schedule for an operation on Monday, where they will put a hole in her skull to facilitate giving chemotherapy directly to her brain. After that chemo, we will have radiation treatment, local to her brain also. The central nervous system problems are still with us, including a double vision problem and a problem with cranial nerve VI, dealing with the facial muscles.

Today seems a bit better than yesterday- better days like today are what keeps us going.

The Kathryn Condie Clarke Leukemia Trust Fund
Account number: 004657664772
Bank: Bank of America

Paypal account: [e-mail]

I hate to ask...

[tekiegreg]

But I thought she had leukemia, did it spread to her brain as well? Or is this drilling holes in skulls normal procedure for Leukemia anyways? Just a little curious...

Re:I hate to ask...

[L0stb0Y]

Acute Promyelocytic Leukemia can spread into the CNS (see my earlier journals about this)-

The problems with her CNS (central nervous system) are considered seperate than the problem with the problems in the blood. Although the same leukemic cells are in each place, due to location in the body they must be treated differently. From what I understand (talking with all the doctors) there is something called a 'blood-brain barrier' that IV administered chemo cannot cross (or at least IV chemo is not effectiv

Be Strong

[Plammox]

I know what it's like to watch your parent, relative or loved one suffering from a (potentially) fatal disease. It changes you forever. You can't go back to being the person you were before.

Be strong, and don't forget that your presence means the world to your wife, helping to summon her strength to pull through the treatment. Also remember that you're doing the best thing any human being can do. You're there. Even though you'll both have emotional ups and downs, this is the best and only thing to do.

I'