Newborn babies in the United States are routinely screened for a panel of genetic diseases. Since the testing is mandated by the government, it's often done without the parents' consent, according to the National Newborn Screening & Genetics Resource Center. In many states, newborn, babies' DNA is stored indefinitely, according to the resource center. In New Jersey, newborn babies' DNA is stored for 23 years. In 2008 alone over 125,000 samples of newborn's DNA was collected and stored in a government or state run lab in New Jersey. While I do not think that parents should forego such genetic screening, I think they should have the right to have the screening done privately and with their complete consent. While we know the law (GINA) signed by then President George W. Bush is supposed to protect future generations from discrimination based on their genetic profiles, even the National Center for Missing and Exploited Children suggests that only parents or legal guardians should have access to a child's genetic profile. Many parents don't realize their baby's DNA is being stored in a government lab, but when they find out, as this couple did, they take action. Parents in Texas, and Minnesota have filed lawsuits, and these parents' concerns are sparking a new debate about whether it's appropriate for a baby's genetic blueprint to be in the government's possession.
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