Comment Some further considerations on ALS (Score 0) 385
I had a very good friend die from ALS last year. It is a sod of a disease and unpredictable re the rate it causes deterioration. But it is nearly always catastrophically fast, normally around 2 to 5 years from diagnosis to mortality.
It is possible that in a matter of mere days this sufferer may find herself with no ability to conciously control any digit or limb. Soon after she will not reliably be able to control her breathing, or swallowing. She is certainly already wracked with uncontrolled spasms and cramps which are likely to interfere with any traditional bio feedback device that depends on any kind of user control. Sadly, at the end she will not even be able to control blinking, or where she looks.
I wish I could help with this problem, but it is way outside my expertise. A simple, cheap, and reliable method to call for help would remove some of the terror from the lives of ALS/MS/MND/MD sufferers. And ALS victums do live in constant terror. It would also reduce the stress on their carer(s) and families.
I hope this gives you a better appreciation of the problem. Please, keep hacking at it 'til it gives.
I think I've depressed myself enough for one sitting.
Regards
Ratsarse
It is possible that in a matter of mere days this sufferer may find herself with no ability to conciously control any digit or limb. Soon after she will not reliably be able to control her breathing, or swallowing. She is certainly already wracked with uncontrolled spasms and cramps which are likely to interfere with any traditional bio feedback device that depends on any kind of user control. Sadly, at the end she will not even be able to control blinking, or where she looks.
I wish I could help with this problem, but it is way outside my expertise. A simple, cheap, and reliable method to call for help would remove some of the terror from the lives of ALS/MS/MND/MD sufferers. And ALS victums do live in constant terror. It would also reduce the stress on their carer(s) and families.
I hope this gives you a better appreciation of the problem. Please, keep hacking at it 'til it gives.
I think I've depressed myself enough for one sitting.
Regards
Ratsarse
