In case you haven't looked into it, I highly recommend C3R (http://en.wikipedia.org/wiki/Keratoconus#Corneal_collagen_crosslinking_with_riboflavin). I also have keratoconus and unfortunately it has now pretty severely degraded my vision. If C3R had been available when I was first diagnosed (about 12 years ago) my corneas would be doing much better right now. The procedure is becoming more common in North America. I had mine done in Toronto (www.bochner.com) but I know that more and more places are starting to do it.
And, regarding the story, I too and very excited by the prospects of it. While C3R has halted the progression of keratoconus, an artificial cornea could greatly improve my vision.