Not an infarction though. I was also dead for 8 Minutes. I was 35 and was in good health, maybe 20lbs more than ideal for my height, I swam and cycled a few times a week. But there you go, I coded and died. CPR was performed, then I self-resuscitated (doctors words, not mine), but had presented complete heart failure (everything inconclusive, viral cardio myopathy and myocarditis are the likely causes - but I don't smoke, do drugs and don't really drink that often). I had huge clots in my ventricles.
The doctors were surprised that I had survived - bi-ventricle failure has a very minute chance of survival. I was fortunate, though. I coded at the hospital as I had checked myself in thinking I just had pneumonia (I also hadn't slept in a month). I woke up a week later. Barlow said there are no angels, cherubs, etc. He's right. There's nothing - and if there was something it was straight out of that hallway in Beetlejuice. But that was really just me barely conscious while I was medically sedated. I will say that if you have a bad doctor they can kill you all the same even if you do code there. The ED doc was ignoring me and a friend (who is a also a doctor - and could pass for Greg House) showed up to take charge when the ED doctor tried to brush my friend off and said, "Everyone here is sick." That ED doc was let go not long after that.
I was on ECMO then I was put on a bi-vad and expected to have one path: to transplant. But I was fortunate, I recovered and the bi-vad was explanted. That's just as rare to happen as surviving massive cardiac arrest. At my hospital, I was one of four patients out of ~100 who were explanted without a transplant over 15 years. I was on the transplant list, however and the transplant team was ready to promote me to 1A when my echo and right-heart cath showed massive improvement. Not everything is perfect, I'm still on the list - it's just something that I'm going to have to deal with further down the line. Over a calendar year, I totaled maybe 10 or 11 weeks in the hospital. ICU, step-down and physical therapy for the first go around because I had atrophy from being immobile for 8 days.
With insurance, I was fortunate. I was fully covered. I might not have a ridiculously paying job, but my company did go for the best benefits packages. My out of pocket for all of this was less than $1,000 (most of that was meds and follow up appointments - none was the actual stay in the hospital). It's scary to me that when the time actually comes for a transplant (for me it's not if, it's just when) that my insurance situation will have changed. With my current plan, I've been approved. I don't need one right now, but when the time comes, what then?
What's even worse, IMHO, is that the doctors, nurses, transplant team, etc. know this and really can't do anything except to tell you to fundraise if you don't have the money. They even have seminars and tell you to use gofundme and other crowdsourcing avenues to raise money. All the people I've met who had been on the list for years on various VADs or pic lines for a near constant stream of medicine who couldn't afford to live was humbling when I had it relatively easy. The anger, pain, and confusion of the unknown is just starting to sink in for me now that I'm actually planning long term for this and it's changed what I thought was a plan to get married and have a family. Now I'm second guessing that entirely because I can't stand the thought of someone potentially being burdened financially or emotionally with what I have to deal with.
I wish Barlow all the best and hope he succeeds in his fund raising for his costs. I wish it was that easy for more people who end up in situations like this.
Wow, I did not expect to write all of this. I just realized I've never spoken publicly (even anonymously) about what I've been through.