> How much information do they need?
That is a key question. Schools are often the available caregivers, with the legal responsibilities described as "in loco parentis". They are responsible for the child's safety on the school grounds, including the child's medical safety. How much information does a nanny, a babysitter, or an athletic coach nned to handle emergencies? Anaphylactic shock from a bee-sting or peanut allergy can kill within 30 minutes, much too long to obtain medical records from a highly secured third-party system. If a caregiver doesn't know about the condition and doesn't have the right tools available, this can be fatal. Asthma, epilepsy, and diabetes can all create dangerous and confusing reactions for children who may themselves panic and not be able to self-diagnose. And since the discovery of AIDS, schools have understandably become much more aware and cautious about long-term infections, even if the parents and their teachers try to provide as "normal" a life as possible for the child and keep quiet their illnesses.
I also recall a child from long ago, when I was much younger. He had cystic fibrosis, and his school needed very extensive medical records. He was a wonderful child, one of those chronically ill people who appreciates that every breath might be their last and lives life to its absolute fulleest. The school and community, collaborated to help him attend normal school. His family's friends, and soon his own friends who happened to be adults, provided the extra hands-on medical care the school could not possibly afford. I was asked to help because I was the only one available who could visit after school lunch and who would _beat_ him properly. He needed chest percussion several times a day to help him cough up mucus. There are some technological replacements for this chest percussion now. But to the best of my knowledge it's still most effective done by hand, and preferably by a friend who appreciates that they are saving the child's life.
It's an odd talent, but one I treasured being able to share with the child. I'm sure he died decades ago: cystic fibrosis patients don't have a long life expectancy. But the lessons about living life to the fullest resonate: I hope to have some small fraction of his courage and zest for life as I age further.