I'm 66 and retired; was on SSI for a year and a half, was required therefore to retire at 64. Due to previous long-term health problems, had no recent work history (I did some odd jobs and computer work off the books as I was able to get and to do) so I get the lowest amount allowed by law. State so far pays Medicaid premium.
Rent is 500/mo. for 160sq.ft; as an apartment it kinda sucks but if I regard it as a tourist-class cabin on a liner it's "charming". Best deal based on needs and availability in this city. With a felony conviction, rules out subsidized/senior housing; county says I qualify for nothing they might offer.
So far this year doctor's appointments, blood draws to monitor stuff, a third op on leg (had a DVT with compartmentation and two ops to save the leg, what's left of it), another for lung cancer, consults with ortho, dentist, heart guy, and the two surgeons, X-rays, various CT, PET, and MRI scans, the ops themselves, picking up scripts (opioids can't be phoned in) and picking up meds, I'm out 1000. Add another 500 for getting groceries and whatnot. Plus co-pays, but who's counting. Luckily almost all those locations were in the cheap zone for my discount cab fare, 4 bucks one-way, some were 12, one 16.
This month, for instance, after paying for Internet access and cell, and minus what I've already shelled out, I have 59 left over for buying personal and household supplies and trips to supermarket for those supplies and groceries, (in cheap zone for cab or using a ride service, round trips anywhere I normally go come to 8 bucks), picking up scripts, taking them to pharmacy, picking up meds. So far I've had to cancel one doctor's appointment and put off three tests and three follow-up consults (the leg and lung cutters want to see me, as does the heart guy). Next month if things work out I should be able to schedule all the scans and blood draws for the same day at the hospital. Don't know about the rest yet. Merry Christmas.
But don't misunderstand, please. I'm indoors out of the rain, have heat and electricity and reasonably clean water, and nobody's shooting at me, so I am grateful for what I do have.
(And somewhere along the way I want to try to get a monitor to replace the one that died, so's I can use my '09 home-built tower instead of the old laptop I picked up that year.)
A year ago all the meds issued on the same date so if everything worked I could do the whole shebang in one trip (with a wait time of usually 4-6 hours at pharmacy). Now, with changes to meds, insurance and pharmacy problems with attendant delays, and delays owing to personal indisposition, it takes five trips. Since neither doctor, pharmacy, nor insurance pharmacy clearing office will work to rationalize things, I'm reducing or skipping meds so as to get everything back on the same date. Saving even 30/mo is critical just now.
I'm still on crutches, and although I can walk OK on a good day, cannot stand long enough (swelling->pain->loss of consciousness; it's only been the last few months I could sit with both feet on the floor for brief periods) to wait at a bus stop (I can get a half-fare senior/disabled card and would be able to get to a few places, taking better part a day back and forth).
Forget I brought up the whole assumptions thing, OK? It was meta-level stuff anyway. It's obvious there's a communications breakdown, and I can't think how to fix it, sorry. I never said or even meant to imply that it was about me.