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Medicine

Journal tomhudson's Journal: Quality of life 9

With my eyesight continuing to be a problem, it's become obvious that I can no longer even code my own little side project - it just takes too long to "get in the zone", too long (a week or more) between attempts, etc.

That kind of sucks.

Making it worse, unfortunately, is that until I'm "legally blind", supposedly I can work. At what? Nobody's going to hire someone who, from one day to the next, is unable to say that they can or can't use a computer for extended periods of time, and needs 20 to 40 days off a year for doctors appointments and stuff.

Sure, I've been through a lot worse, and survived ... but as the saying goes, that was then, this is now.

Back when I was recovering from the flesh-eating bug that almost killed me and the shrink stopped by and said it must be hard copig, I told him it was no big deal because I'd already been through a lot worse growing up, for a lot longer, and I would get through this too ...

This time feels different. It feels ... I guess the best word is "pointless."

I really wish spring would hurry up and get here! Where's global warming when you need it? Wasted on the polar bears!

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Quality of life

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  • Sorry to here 'bout that. Hope there's effective treatment available.

    By the time I was 14 I'd had seven eye ops; now I've got macular degeneration and a cataract in the one eye that sorta works. At least I can still read without too much hassle. So I've some idea of how it sucks.

    • They both still work okay for stuff like watching TV. A 50" screen helps a lot - but if I were a hockey fan, forget it - even standing 3 feet away, there's no way I could follow the puck.

      Which is okay because I'd rather watch 2 Broke Girls anyway :-)

      It's just that I was really, really hoping that I could at least get *some* work done. There just don't seem to be any real job options at this point.

      About the only real option left is politics - it seems to be where everyone who's otherwise useless ends up

      • That's a real bummer; sorry.

        Might some collaboration be possible viz. code - somebody to deal with the "fine print"?

        I'm down to four shows, haven't owned a TV since 2005.

        Hmm, politics. I've found great variability at local and still some at state level. Politics as "art of the possible" seems to apply there more often. Who knows, you might have fun with it, and I suspect you'd be like a breath of fresh air.

        • My coding style is *really* different - it kind of reflects that I started with asm and worked my way up, so I tend to look at problems differently.

          As for TV, I really didn't watch much this last couple of years, despite finally buying a big-screen TV - it would sit there for months not turned on. It's only lately that I'm starting to "get into it", since it's a lot easier to look at than a monitor - I don't *need* to see all the detail to enjoy the story.

          As for politics, I've run 3x, but that was lon

  • I don't have much to say though. Some encouraging words, perhaps, but you know all too well how your own situation is.
    • Thanks. I am figuring out how to deal with some of the issues, to slow down the deterioration. Things like "don't lift anything" and "don't bend over to pick up stuff". It's advice that, one day while waiting to talk to the medical secretary to schedule an appointment, the other patient waiting and I started talking, and he shared those tidbits (I pretty much always end up talking with whoever's waiting ... better than trying to read a book :-) He had to stop doing yoga because the increase in blood pre

      • Do I get a signed copy of your future autobiography? :-P
        • You may not want it after you've read it - it won't have the usual trollery and other fun stuff in it.

          I just re-read the first chapter, which I wrote a few weeks ago and then left to "gel" a bit, and it's not bad ... not great, but not bad. Needs some editing, and to be split into 2., then I'll work on chapters 3 and 4 this weekend.

          It might be fun to do it as a serial ... release a chapter every once in a while ... but then if I find that there's part that needs re-working to make the story flow better

    • Likewise. I've been reading your (tomhudson's) posts on your health problems just as closely as I've read the ones on technical and political issues. It's hard to know what to say, except that I am sad that you're suffering.

"Don't try to outweird me, three-eyes. I get stranger things than you free with my breakfast cereal." - Zaphod Beeblebrox in "Hithiker's Guide to the Galaxy"

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