Comment Re:There's no way they'll abuse this (Score 1) 570
These tests don't identify the same DNA sequences that are used in criminal databases, and they can't be used to identify people. If an infant does have one of those diseases, that fact eventually goes into their medical record when the parents bring their (dying) child to the pediatrician or emergency room.
Of course it's not the tests for diseases that are at issue - it's the retention of the blood specimens obtained to perform these tests.
Retention policies vary by state - in Washington State, the policy is to retain specimens until age 21, though as far as I know there's no way to verify destruction of the samples (it's not as though they're returned to the parents, for example.) See http://www.doh.wa.gov/ehsphl/PHL/Newborn/privacy.htm.
When I had my child in Washington, I had the tests performed - but subsequently contacted WA DOH to have the sample destroyed pursuant to WAC 246-650-050.
-Isaac