Penguinshit writes: Francis Tsai, famous fantasy and video game artist, has overcome the debilitating effects of Amyotrophic Lateral Sclerosis (ALS or "Lou Gehrig's Disease" — the same affliction as Stephen Hawking) by using a computer system that follows his eyes as a cursor. Despite being completely paralyzed, he continues to make amazing art.
Penguinshit writes: "People with advanced stage Amyotrophic Lateral Sclerosis (ALS, aka Lou Gehrig's Disease) are often fully quadriplegic and have a machine pushing air into their lungs. They need someone to always be within earshot of alarms, but what happens if the caretaker goes to sleep? Thanks to eyegaze computer technology and social media, one can call on another to sound the alarm!"
As reported in the July issue of Cell Stem Cell, the task force said they had been aware of many misleading direct-to-consumer claims by various global clinics touting therapies for a wide variety of conditions. Such unethical marketing "could place individual patients at risk and jeopardize the progress of legitimate research". The guide aims to evaluate these clinics on the basis of, among other criteria, preclinical research (or lack thereof), regulatory oversight, whether an ethics committee is involved to protect patients rights, and whether the clinic provided information to the ISSCR group. The website has a form where patients can submit clinics for investigation by the ISSCR.