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Journal Journal: Pulse 29, last day. 1

One more dose of metro, and it's over. A bit less nasty than P28 was, but still quite unpleasant. In the last week, tho I must still painfully bend my fingers back, I'm more able to use the mouse than before. Also, my mind seems more stable, more "together" than it had been. I really hope it stays that way after the usual post-pulse apoptosis. If it does, it will have me eagerly anticipating pulse 30.

User Journal

Journal Journal: Checking in 1

Right from the start, pulse 28 was a bad one. I endured, and rode it out, as I lost all use of my left hand. Spent several days post-pulse in bed, unable to put my contacts in, or even straighten out my fingers enough to drive my powerchair. I was a wreck, both physically and mentally.

Then, slowly, things began to improve. After much painful work hyper-extending my fingers, my hand regained some functionality. My legs are showing some similar small signs of improvement too, and even my brain seems to be on an upswing.

Pulse 29 is due next weekend. I REALLY hope it's not as bad as the last one, and that I start seeing more improvement, soon.

User Journal

Journal Journal: Pulse 26 update

Pulse 26 was difficult. I had thought I might have a UTI, so I was taking an extra antibiotic. The pulse went well, but the aftermath was pretty bad. I plan to wait until the weather cools off, before doing another pulse. Let's keep our fingers crossed!

User Journal

Journal Journal: Pulse 25 update

Hi Journal, 's me again. I am done with my 25th heavy antibiotic pulse, treating my MS. Over the next week or so, I'll recuperate and see what abilities I re-gain, then I do it all again. And again. And again, until I no longer improve. So far, it's working well - I typed all this in under an hour.

User Journal

Journal Journal: Pulse 24 is in the books

Again, I'm seeing more trivial improvements. Still waiting (im)patiently for something more dramatic, but I think I'm only a few pulses out. I'm aiming for EDSS 7.5 or better, from a 9.0 two months ago.

User Journal

Journal Journal: For Sol

http://www.celiac.com/catalog/product_info.php?products_id=70

User Journal

Journal Journal: For Tuxette 8^) 1

http://hosted.ap.org/dynamic/stories/P/PRODIGIOUS_PENGUINS?SITE=TNJAC&SECTION=HOME&TEMPLATE=DEFAULT

User Journal

Journal Journal: Pulse 23 update 1

They're getting easier. I was only moderately depressed for under a day. Improvements are minor and trivial, mostly about thought clarity. P24 next week, hopefully.

We're approved to buy a house, now we need cash to keep moving forward. Grr.

User Journal

Journal Journal: Pulse 22 update 1

Trying to improve faster, I went an extra day, making it 6 days worth of Flagyl instead of 5. It looks like I chose well - 1 day afterwards, my typing is noticeably better, and I set a new Kshisen high score by 59 seconds. Things are looking good for me to beat SPMS, an "incurable" illness. Way cool!

On Tuesday, I send off the stones - alexandrite, color-change garnet and green opal - and the gold ring, to get them set for my Mom's ring. I'll post pix when it returns.

User Journal

Journal Journal: ::crying:: 3

Between 4:30 and 9AM, our beloved cat Dainty Feet passed away, peacefully, in her sleep, surrounded by her loved ones. She will be sorely missed.

Jeannette, Vikki, Princess, Cally and Fray - Clan of the Cave Cats

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