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Submission + - Prepare for leaks of personal genome and medical data

StevenBrenner writes: Edward Snowden’s leak of Top Secret FISA Court and NSA documents led to questions about the privacy of millions of people, with government officials arguing these programs are necessary to save lives.

Medical research with genomic data is another government program with a large--and rapidly growing--collection of private information. With broader awareness and agreement that this project will save lives, it has strong public support. That does not, however, make it immune to risk of leaks.

As genomic analyses increasingly reach the clinic, it seems inevitable that there will be a breach spilling large numbers of personal genomes and associated clinical information. Today, Nature published my piece about the unique hazards of a genomic data leaks and how to reduce their frequency and impact. You can also construct an annotated version with additional jetsam and idiosyncratic commentary.

Every successful person has had failures but repeated failure is no guarantee of eventual success.

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