First, condolences on your condition. I understand that this is not the optimal outcome but, like you said, you're coming to terms with it. Remember to make the videos about life, her life specifically, not your condition.
Encourage her to embrace those things that that not only make her different to others but also what makes other different to her. Be sure to outline how one decides how to make items or issues priority and what "taking care of number one" means.
I don't envy your project but I endorse with all of the geekry that makes us Geeks and Nerds and good humans.
Best of luck in your venture and just remember that she will have fond memories of you from the time your shared; be honest and concise as possible so there is nothing lost in translation.
Hang in there!