I have a degenerative hearing condition called cochlear otosclerosis which wasn't diagnosed until after I had established myself as a successful airline pilot; a career I loved and was deeply invested in both professionally and personally. I have since retrained and I'm now a certified (degree-carrying) computer science nerd. Unfortunately, not a career path that was even vaguely close to first choice, but it pays the bills.
Having this condition also means there is a not insignificant risk I can pass the genes onto my children. This treatment could provide a cure for myself and a "get out of jail" for my children. I cannot describe how delightfully excited I am about the possibilities in medical science right now!