I usually avoid hospitals and the medical profession in general unless it is needed, ie, broken bones or donating a kidney (Which I did recently.)
A couple years ago while camping my some broke a bone. I put it in a splint then took him to the hospital to get a get it set and placed in a cast. This was on a Saturday in a very "out-in-the-boonies" location. Before the staff would even look at my son, I had to sign a patient's "Bill of Rights." indicating that I had read the items on their list... There were around a dozen items and I don't remember what they were except for the first one. "The Patient has a Right to all medical records assembled during the visit." Maybe this is enforced in other hospitals. I don;t know.
Anyway, My son was X-Rayed and dealt with and released.
On the way out, I asked the secretary, who made me sign the "Patient's Bill of Rights," for a copy of my sons X-Rays and a print out of the Vitals they recorded. I was told "No, Those are not for you." I put on my "Contrary-Old-Bastard Hat" and stated that I have a "right" to those and read back the 1st item on theh "Patient's Bill of Rights." I explained that the X-Ray and vitals were records of the visit and that the hospital, before my son was allowed any medical attention, made me sign a form to acknowledge that I have a right to those records. I was told that I had to go through the Records department and Billing in order to get the records. These offices would not be open until the following Tuesday (due to a Holiday.) Not wanting to get mad at the secretary for doing her job, I asked to talk to her boss or whoever was in charge of the hospital that day. She informed to me with all of her arrogance that since it was the weekend, she was in charge. So I ranted to her for a while and then read the entire "Patient's Bill of Rights" to her. I strongly emphasized that nowhere in this document, which we both signed, did is mention that I should go through Billing and records. After ranting a bit more she let me know that my son's doctor can request the records and the records will be sent without charge. I explained more how I am his parent/Guardian and in charge of his primary care and that I want the records to that I can hand deliver the records when I can return and set an appointment for cast removal. Again I read the entire "Patient's Bill of Rights" to her and then explained that nowhere on it did it say that my doctor was to get the records. I asked her bluntly to obtain a copy of the records. She actually stomped her foot and said, "No."
"OK," I said, "since I have been forced to acknowledge that I have a right to my son's records, I am going to sit right here in the middle of this hallway until I get them." And I did; I sat down in the middle of the hallway. (My son was looking at me in a state of shock -- He was at that Jr. High age when anything a parent does is considered embarrassing .)
The secretary stared at me for about 30 seconds. then left. A minute after that she came out with a doctor and he asked what was up. I mentioned that I was waiting for a copy of my son's medical records. He nodded, went behind the counter and gave me the X-Rays and vitals papers. I said "Thank you" and left.
This anecdote is not so that I can say I am an old cantankerous fart, it it to illustrate that even though people have rights to information, the ones that hold the information feel compelled not to give it up. THis is true with software, medical data, music... I don;t know where this attitude comes from.
[off my soapbox]